Academic Work

I began my career as a medical anthropologist, graduating with distinction from the University of Amsterdam. My early research explored the lived experiences of people diagnosed with Multiple Sclerosis. I have worked in the field of disability studies and published extensively on aspects related to living with chronic illness, such as (in)visibility, (in)dependence and happiness. My PhD research focused on how early-onset dementia shapes the relationships of family members in the Netherlands.

PEER-REVIEWED ARTICLES

Hoppe, S. (2022). Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction. Dementia, 21(1), 196–213.

Hoppe, S. (2020). The Other Within Oneself: Understanding Care for a Family Member with Early‐Onset Dementia Through the Lens of Dividuality. Ethos, 48(2), 231-249.

Hoppe, S. (2019). Shifting uncertainties in the pre-diagnostic trajectory of early-onset dementia. Dementia, 18(2), 613–29.

Hoppe, S., Vermeulen, L., Driessen, A., Roding, E., de Groot, M., & Krause, K. (2019). Learning in Collaborative Moments: Practising Relating Differently with Dementia in Dialogue Meetings. Anthropology in Action, 26(3), 10-22.

Hoppe, S. (2018). A Sorrow Shared is a Sorrow Halved: The Search for Empathetic Understanding of Family Members of a Person with Early-Onset Dementia. Culture, Medicine and Psychiatry, 42(1), 180–201.

Hoppe, S. (2018). An exploration of the ambiguities and dilemmas around care for a family member with early-onset dementia. In I. Quaranta, M. Minelli, & S. Fortin (Eds.), Assemblages, Transformations and the Politics of Care (pp. 143-158). Bologna: Bononia University Press.

Hoppe, S. (2016). Disability in tijden van de participatiesamenleving: Een kritische blik naar het streven naar geluk en onafhankelijkheid vanuit Disability Studies perspectief. In G. Van Hove, A. Schippers, M. Cardol, & E. De Schauwer (Eds.), Disability Studies in de Lage Landen(pp. 49-60). Antwerpen: Garant.

Hoppe, S. (2013). Chronic Illness as a Source of Happiness: Paradox or perfectly normal? Health, Culture and Society, 5(1), 265-278.

Hoppe, S. (2012). The negative side of independence: an exploration of the self and others. Medische Antropologie, 24(1),131-147.

Hoppe, S. (2010). Visibility and invisibility in chronic illness. Medische Antropologie, 22(2), 361-373.

Hoppe, S. (2009). "Getting sick has been good to me, not bad": Understanding the experience of growth in face of adversity. Medische Antropologie, 21(2), 277-296.

OTHER PUBLICATIONS

Hoppe, S. (2022) Our whole house has Alzheimer’s: How early-onset dementia shapes relationships of families in the Netherlands. [Unpublished doctoral dissertation]. University of Amsterdam.

Amsterdam Care Collective. (2018) Dementia and the Good Life: Collaborations with the Field. Medicine Anthropology Theory, http://www.medanthrotheory.org/article/view/5606/7414, accessed July, 26 2021.

Hoppe, S. (2018). Burning down the house: When crisis becomes daily life in early-onset dementia. Somatosphere. Web publication/site

Hoppe, S. (2017). Goed leven met dementie, kan dat eigenlijk wel? In A-M. The, J. Pols, & R. Pool (Eds.), Goed leven met dementie: Dialoog tussen wetenschap en praktijk (pp. 31-34). Amsterdam: Ben Sajet Centrum.

Vermeulen, L., Driessen, A., Lemos Dekker, N., Roding, E., Hoppe, S., van den Buuse, S., Krause, K., The, .A.M., & Pols, J. (2017). Goed leven met dementie, hoe doen we dat? In A-M. The, J. Pols, & R. Pool (Eds.), Goed leven met dementie: Dialoog tussen wetenschap en praktijk (pp. 14-19). Amsterdam: Ben Sajet Centrum.

Ahlin, T., Moyer, E. & Hoppe, S. (2016). Slam that #ethnography!. Web publication/site

Driessen, A., Vermeulen, L., Hoppe, S., Lemos Dekker, N., van den Buuse, S., & Smit, M. (2015). Meer oog voor zorg: Ambiguïteiten en kwetsbaarheden in de participatie in zorg voor mensen met dementie. Podium voor Bio-ethiek, 22(2), 14-16.

Hoppe, S. (2012). Pleidooi voor Agency. In J. Jansen & T. Dobbelaar (Eds). Kijk anders, zie meer. Den Haag: ZonMw.

Hoppe, S., Kool, J. & Schippers, A. (2011). Disability Studies in Nederland. Verbinding in de context. Den Haag: Disability Studies in Nederland.

MEDIA APPEARANCES

Radio interview "De Nacht van NTR"

FREE DOWNLOAD

Headline that hooks people in, gets them excited and makes them want to sign up.

CLEAR CALL TO ACTION